Today, Lily got into her new room. She is sharing her room with a little guy that had heart surgery on Monday and is only 9 days old. He is tiny. She has been in and out of sleep today. She has had periods of fussiness and Jared and I can tell she is uncomfortable in some way. She is being given tylenol now for pain. She is getting it about every 3.5 hours. We sat her up in bed, this is the first since she went into surgery. She was not happy and wanted to be held her favorite way. We tried that and it didn't work becuase it put pressure on her incision and little holes where she got some things removed today. Our nurse, Alexis, who has been super nice all day and leaves at 7:30 for the weekend :( suggested we take her for a ride in the wagon. It was an alligator wagon and we laid her down in it and made circles on the floor. (Most of the floor is ICU and we couldn't go in those areas). We are going to try to sit her up in it later. She needs to be able to do normal activities upon being discharged. Her doc, Dr. Huddleston, came around at about 5 pm today and said that she will get a echocardiogram (not her fav) and a chest xray tomorrow and if things look good she will be discharged on Sunday. Good Thing!! She already has an appointment with her ped doc on Monday for a follow up! The worst part for her parents are the sleeping accomodations, when its our shift sleeping in her room and seeing her uncomfortable. PS: We think she may be getting a tooth on top of all this!!
Take care and thanks for all the prayers! They are working so far.
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