Today Lily had a big morning. First, Tara stayed with her last night. She decided to stay up late and slept for about two hours. So at 12:30 AM, she wanted to play. They were up about 1.5 hours and then she went back to sleep. She then woke up at 3:30. Our nurse Jenny put her in the wagon and she sat out with the night nurses while Tara got some sleep. She was scheduled for a blood draw, echocardiogram, EKG and chest xray. Those went better than they did on Tuesday. We changed her dressing for her incision and gave her the medicine (of the hour). Right now, her and Jared are sleeping. Later today, we get the results of the tests and if they are good we go home tomorrow! Jared said that we will be travelng in some nasty weather-of course when we probably will be traveling home with a post heart surgery 15 month old. Should be fun!!
She is sitting up in bed now palying with toys. She is eating and today on the xray table she rolled onto her belly. She wasn't quite sure about that after she did it though. Things are progressing better than we thought. Today we are going to try to make her nap early and give her a sponge bath. Her hair finally has most of the tangles out but lots of medicine in it, making it a sticky mess. Hopefully, this will help her sleep better tonight to rest up for her arrival home!
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